Zoe raises many good points in her deconstruction of the care around death of a loved one and life with a critically ill child.  As a previous change agent for The edge her honesty and courage in tackling a very personal situation to bring learning forward for clinicians and others is to be commended.

We need to talk about these issues if we are serious about providing patient and carer centred care in the NHS.  True leaders share their learning and they lead by doing.  A message for all change agents and a call to action.